“I’m Not Leaving”

Michael Tuohy |

In 2000 when I was diagnosed with multiple myeloma, I was informed that the life expectancy was 2-3 years. Being only 36 years with a young family, I feared my children (then ages 2 and 7) would not even remember me. Over the years, I’ve had many experiences of living with myeloma: some good, some challenging, but […]

Some of My Favorite Things from #IMFASH19

Robin Tuohy |

Hello everyone, since it’s that time of year when we are thinking about “All of Our Favorite Things,” I thought it would be nice to share with you just a glimpse of some of my favorite things from at ASH. These are in no particular order, except chronological, so I can think about each day’s […]

Myeloma Behind the Scenes…ASH

Tiffany Williams |

My pre-ASH19 blog was titled the Magic of ASH, comparing ASH to the magic of Disney. As I reflect on my ASH 2019 experience, I once again am reminded of a Disney comparison. Disney Behind the Scenes is a 7-hour tour that gives customers the experience of learning what it takes to bring the magic […]

John Deflice, myeloma patient, with backdrop of ASH conference in Orlando 2019

Shrimp Options

John DeFlice |

“Anyway, like I was sayin’, shrimp is the fruit of the sea. You can barbecue it, boil It, broil it, bake it, sauté it. Dey’s un, shrimp-kabobs, shrimp creole, shrimp gumbo, pan fried, deep fried, stir-fried. There’s pineapple shrimp, lemon shrimp, coconut shrimp, pepper shrimp, shrimp soup, shrimp stew, shrimp salad, shrimp and potatoes, shrimp […]

That’s a Wrap!

Sheri Baker |

The 61st ASH Annual Meeting and Exposition is over. I’m home in Idaho now, and missing the warm sunshine of Orlando. And the warm and friendly camaraderie of the International Myeloma Foundation’s team of support group leaders. I saw many things that amazed me during my first experience at #ASH19. Thousands of people all trying […]

Cindy Chmielewski on ASH background

Immunotherapy – Front and Center

Cynthia Chmielewski |

Immunotherapy was front and center at this year’s American Society of Hematology’s (ASH) meeting. There even was an Education Session presented by Drs. Shah, Cohen and Borello on this topic. When I first attended the ASH Annual Meeting in 2012, immunotherapy was still in its infancy. The treatments that were being examined in clinical trials back […]

Immunotherapy at #ASH19

Jim Omel |

Immunotherapy has definitely been the center of myeloma attention at ASH. Sessions on Bi-specific T-cell Engagers and CAR-T were many and were well attended. Several Chinese oral abstract presentations Monday morning were inspiring and promising. Deepu Madduri, MD, showed a waterfall plot with 100% response rate in a phase I/phase II study of JNJ4528 BCMA-Targeted CAR-T cell […]

Teresa Miceli on American Society of Hematology background

You Can Leave Your Hat On

Teresa Miceli |

We are well into the flow of the annual ASH meeting. My attendance at ASH19 is as a support group leader (SGL) and as a nurse liaison as a member of the International Myeloma Foundation’s (IMF) Nurse Leadership Board (NLB). Of course, in my blood flows the interests and curiosity of an experienced hematology/BMT nurse. […]

ASH Is the Most Important Conference for Myeloma Patients and Doctors

Jack Aiello |

There is no other single conference where so much information is presented about myeloma. Information about so many topics is provided:  how to treat MM patients in various stages; results of phase II & III trials which may indicate upcoming FDA approvals; pre-clinical research focusing on myeloma targets and cell understanding; and more. Soon I’ll be […]

Taking a BiTE Out of Myeloma

Michael Tuohy |

I have been a multiple myeloma patient and advocate for 19 years. Time sure flies by! As I reflect back on what treatments were available in 2000 when I was diagnosed, I am eternally grateful for all the progress and interest in multiple myeloma! I’d also like to recognize all the patients that have participated in clinical […]