This PRE-ASH blog is my way of sharing with you *highlights of the past to help us refresh our memories and to prepare us for #ASH19! It’s also about reading up on the various “ASH Top 10 for 2019” lists. Here’s Dr. Durie’s list: https://www.myeloma.org/cure-blog/ash-top-10-2019-immune-therapies-again-dominate-news
For those of you that are also on Twitter, please note the following hashtags:
#ASH19, #IMFASH19, #MMSM, #myeloma
You may also want to update who you are following on Twitter to stay on top of posts from #ASH19. It’s an amazing way to be a fly on the wall and hear live updates from key myeloma tweeters plus have interactive tweets with them. Another hint on who to follow in the myeloma world is to check out who other’s follow and if of interest to you, follow them too.
The #IMFASH19 Team consists of patients and support group leaders that have dedicated their time to educating themselves with the goal to help you understand from a patient perspective what to look forward to. We also are thrilled to once again have on our team, IMF Nurse Leadership Board Member, Teresa Miceli, RN, BSN, OCN from Mayo Clinic in Minnesota. The more we understand, the better conversations we can have with our own myeloma specialists to determine the best treatment, side effect management and quality of life! #KnowledgeIsPower
Here’s the #IMFASH19 Team Twitter handles all in one convenient place for you to follow:
- Jack Aiello: @JackMAiello
- Sheri Baker: @blondie1746
- Yelak Biru: @NorthTxMSG
- Cindy Chmielewski: @MyelomaTeacher
- John DeFlice: @JohnDe1MYELOMA
- Linda Huguelet: @LindaMYELOMA
- Teresa Miceli: @IMFnurseMYELOMA
- Jim Omel: @IMFjimMYELOMA
- Valarie Traynham: @MyelomaValarie
- Michael Tuohy: @IMFmikeMyeloma
- Robin Tuohy: @IMFSupport
- Tiffany Williams: @MyelomaHope
I am extremely grateful to these leaders and hope that your read all their blogs and follow them on Twitter too!
*Highlights of the Past:
I’m a big believer in doing my homework and being prepared. To help with that, I typically review a number of resources to get me up to speed to best understand this year’s ASH abstracts. Here are a few recommendations for you to review:
- Best of ASH 2018 Teleconference with Dr. Brian G.M. Durie
Myeloma Working Group Conference Series: “Making Sense of Treatment”
- CAR T Therapy: https://www.myeloma.org/videos/ash-2018-car-t-cell-therapies
Last but not least under Highlights from the Past, I’d like to recognize and thank the #IMFASH18 team for their work last year! Cheers!
Thanks to YOU for reading and getting ready for #ASH19! Please come back each day to read all the patient blogs and of course all the myeloma specialist video interviews!
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