Michael Tuohy

Michael Tuohy was diagnosed with multiple myeloma in 2000 when he was 36 years old. With two young children (ages 2 and 7) the focus was always on finding the best treatment options, and beating myeloma. He had an autologous stem cell transplant in 2002, and is currently on Revlimid® His approach over the years has been to become empowered by learning as much as he could to have productive conversations with his doctors, and to then share his experience with others to help them along their own journey. He and his wife Robin started the first myeloma support group in Connecticut in the Spring of 2001 with the help of the IMF, which is known as the Connecticut Multiple Myeloma Fighters Information Group.

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“I’m Not Leaving”

Michael Tuohy |

In 2000 when I was diagnosed with multiple myeloma, I was informed that the life expectancy was 2-3 years. Being only 36 years with a young family, I feared my children (then ages 2 and 7) would not even remember me. Over the years, I’ve had many experiences of living with myeloma: some good, some challenging, but […]

“Don’t Back Down!”

Michael Tuohy |

The days of ASH are filled with oral abstracts, posters, education, and scientific sessions—some of which are even simultaneous sessions. It’s a challenge to be everywhere, and I’m thankful that Dr. Durie provides the leaders with his suggestions on what would be most valuable for us to attend. Program for the “Living Well with Myeloma” […]

Taking a BiTE Out of Myeloma

Michael Tuohy |

I have been a multiple myeloma patient and advocate for 19 years. Time sure flies by! As I reflect back on what treatments were available in 2000 when I was diagnosed, I am eternally grateful for all the progress and interest in multiple myeloma! I’d also like to recognize all the patients that have participated in clinical […]